I am a new family member of one who is on dialysis. Attempting to educate myself and my family member, although, the staff are great about answering questions, for the most part. They are busy, but when I see other posts, I am fortunate that my family member is where he is, in spite of small things that irritate me, considering I am a patient advocate (by trade). so to speak.
I am shocked at what I have read of horror stories of mean nurses and vindictive nurses, but, I have seen just that happen.. The passive aggressive nurse who takes it out on the patient because he/she complained.. I have seen this in the hospital NOT at the dialysis unit.. Also, I have brought some concerns to the clinical manager and she has been GREAT and RECEPTiVe which is a rarity.. I appreciate her so mucha and in spite of her being busy, she really cares and is so sincere. I do not feel as comfortable when she is not there... she is a living angel... and i wish all the patients and family members could experience what I have .... It is building a trusting relationship which is difficult when you have been burnt, so to speak, by nursing staff.. etc.

p.S.

DOES ANY ONE KNOW WHERE I CAN GET INFORMATION ON DETAILS IN SIMPLE TERMINOLOGY ABOUT DIALYSIS,, SIMPLE BUT EXPLAINS ABOUT SODIUM,, ETC.. COMPLICATIONS, WHY? CONDUCTIVITY? HOW IT AFFECTS THE PATIENT.. ETC THANKS SO MUCH

First you must remember that Dialysis,Hemo or Peritoneal is not an exact science..It takes time to find dry weight,also the other co morbid conditions that patients have LVH,CHF, anemia etc take time to evaluate before the patient feels better.Also with continued Dialysis urine function usually ceases.With Ultrafiltration,sodium modeling,UF profiling,blood volume monitoring and good patient assessments,and always checking medications,eventually the patient should feel better..

Thank you very much.... appreciated