After my treatment I go home feeling washed-out and tired I usually sleep the rest of the day away, on the days I do not have tx I have diarhea all day my stomach and all my bones hurt I usually cannot leave the house or stand long until late afternoon when I have taken a couple of anti-diarhea pills, my RN at the center wanted me to believe it was all in my mind so the doctor gave me Wellbutrin-xl that raised my presure so high it busted a vessel in my eye and to add to my diarhea I also had sleepless nights! Does anyone else have these problems? granted I get depressed once in a while but it is not that often and I usualy know when I am.

I am sorry you are having such a difficult time. I am not a dialysis nurse, but I do know that it does wash you out, especially on the day of dialysis... I do not know about the diarrhea.... I am sorry that the RN made it seem like it was all in your head... Perhaps you can talk with your primary care doctor about this... I know we can, at times, feel intimidated, esp when we know we hve to be someplace for a long time... i.e. u telling the nurse it is not in your head.... Maybe requesting 'to be a part of the team, meaning, your doctor, dialysis staff and you... I would also suggest a website, that was suggested to me by one of the moderators... rhyde.... it is kidneyschool.com it is a great site.. also ikidney.com ... perhaps and hopefully you can speak with the doctor and tell him that you are having these symptoms and they are real...? being washed out is real..... esp the day of dialysis.. u are not losing your mind. Good Luck and hope you feel better... and, btw, I am a nurse and hate it when a nurse makes comments ie 'it is all in your mind' etc... shame on her.............

quote:

Originally posted by altagrace:
After my treatment I go home feeling washed-out and tired I usually sleep the rest of the day away, on the days I do not have tx I have diarhea all day my stomach and all my bones hurt I usually cannot leave the house or stand long until late afternoon when I have taken a couple of anti-diarhea pills, my RN at the center wanted me to believe it was all in my mind so the doctor gave me Wellbutrin-xl that raised my presure so high it busted a vessel in my eye and to add to my diarhea I also had sleepless nights! Does anyone else have these problems? granted I get depressed once in a while but it is not that often and I usualy know when I am.

quote:

Originally posted by altagrace:
After my treatment I go home feeling washed-out and tired I usually sleep the rest of the day away, on the days I do not have tx I have diarhea all day my stomach and all my bones hurt I usually cannot leave the house or stand long until late afternoon when I have taken a couple of anti-diarhea pills, my RN at the center wanted me to believe it was all in my mind so the doctor gave me Wellbutrin-xl that raised my presure so high it busted a vessel in my eye and to add to my diarhea I also had sleepless nights! Does anyone else have these problems? granted I get depressed once in a while but it is not that often and I usualy know when I am.

You say your bones hurt? That means your phosphate may be too high and you probably should get your parathyroid levels checked. Also your calcium levels .. do you know what they are? Are you on Vitamin D pills (Rocotrol?)

It is very common to feel drained after hemo because of the rate of fluid being taken off in such a short few hours .. but diarrhea between your dialysis days? Do you know how much fluid you are supposed to be limited to every day> Perhaps you are having too much? That would explain feeling so drained after dialysis as well when they have to take off so much.

I am just a patient and am pretty new to hemo (been on PD for years but had to swich to hemo in July of last year) but I have decided it is VERY important to KNOW about my health care and I suggest the same for you.

The net can tell you a lot.

Also ask your primary kidney doctor about anything and demand to get the answers you very well do deserve!

Good call on the phosphate levels and the calcium, take your phosphate extractors(if you run out you can take Tums /durning/ your meals). When your phosphate gets up it leaches calcium from your bones and this we certainly make them sore. Beyound that the phosphate will begin leaving your body throw your pours cause little white, pimply like things on your skin and make you itch /Alot/, not to mention the long term bone problems..

As for the diahrea, this sounds like to much fluid intake between treatments. Your body can only absorb so much fluid so fast and the rest has to go somewhere, especially if you don't urinate any more, this tends to be out the back door. I know its hare, particularly on hot days, but you have to watch how much you drink.

When you do drink, try to keep pure water to a minimum, instead use milk and juice, atleast a /small/ part of these will be metabalized by the body and not just stored as fluid.

Above all things you do in your day to day life, besides meds and treatments ofcourse, your fluid level is the most important towards your overall well being.