hello I've been on pd for about 3yrs. my phospherous level ranges from 6 to 9 or so.
I cannot seem to stop eating that which i should'nt-I'm very upset with myself. Because I cannot control myself, my bone scan
and ct scan show that i have bone disease and the orthopedic put me on a walker. I also fell a few 4 or 5 months ago and I have a nondisplaced/hairline fracture that is not healing. My nephrologist says that my pth level is @ 1246 down from 1500. Even so he says that if i dont have the surgery-i wont be able to walk. My biggest fear is that i will never be able to sing again- I'm a Dramatic Soprano Soloist. This is by far the greatist gift God has given me. I really dont know what to do. Please, someone respond
if you have had this surgery, or not.

Thank you

I know of and have talked to several people of have had their Parathyroid taken out, and have had no problems what so ever...It is a relatively easy procedure and once it was removed, they felt awesome...Its like their body stopped fighting itself and they had much more energy...

Glad to hear you on PD..Are you using Baxter Products?

Well helo everyone. The last time i talked to you, I was abt. a wk. away from my parathyroidectomy. I was schld. to have the surgery on a Monday. I was hospitalized on Dec. 9th,2002 and returned home yesterday, jan 9th,2003, what 29 ,30 days later. Still no parathyrdcmy. Rather, I had both kidneys removed. ok speak up everyone- tell me all about you! I'm on my way to recovery-but i cant wait to hear your stories.

I've had it done 5 times(pthyectomy). Many people, including doctors, often don't believe that I had it done that many times. The surgery would help you for a while. It's not a permanant fix. In one of my surgeries, they touched my voice box. I sounded like a little girl for a while. It didn't take long before my voice came back though. And you do have to understand that this was the 4th surgery. This means that there was a lot of scare tissue, making it harder for the surgeons. I've been on dialysis since 1982, and my first surgery for my PThy was in 1989. The highest my pth has gotten was about 3000. I was also in a wheelchair, and my couldn't grip anything with my hands. The surguries, gave me back mobility. Don't get me wrong, some of the damage is irriversible. I can walk, I can type, I don't often run because the bottom of my feet have disformation due to the calcium deposits. It was a chance at a new life I was more than willing to take. Find a good surgeon and Good Luck.

Hello,
This is quite a bit later than your original post & replies but no one mentioned either 1) phosphate binders or 2) Hectorol. My clinic nutritionist told me that if I did eat high-phosphorus foods to just up the binder accordingly. Also, my pth level was high and my nephrologist started me on Hectorol which is the activated form of Vitamin D ("regular" vitamin D will NOT give the same effect and definitely should not be taken for this purpose - acts completely differently in the body.) I think there are some other brands of this drug too - you need to get an rx for it. You didn't mention if you were utilizing these methods but I would certainly hope any medical team would try non-surgical methods first!