I have finally started PD and I have got to say, all of the material I was given prior to making this choice was very misleading. *I was told there would be a FEW inches of cather that was actually exteriorized. I have about six inches of catheter then a titanium connector and then a white and blue connector, with a total of about 12 inches of stuff hanging out of my gut. * I was told that people would not be able to tell that I had a catheter. I have a bulge on my left side, where my catheter is. It is very obvious and impossible to conceal. * I was told that I would hook up at bed-time and my dialysis would be done at night, freeing up my evenings with no need to dialize at any other time. I have to do a manual exchange at 2:30pm, at work, another exchange, on the machine at 6:00 and then hook up to the machine at 9pm, remaining on the machine until approximately 6:30am.
I do feel better, energy wise but I am constantly bloated due to the 2.5 liters of dialisate in my peritonial cavity. I am not so sure that I would have made this choice had I known everything.
<Concerned about PD>
Posted
My father was on peritoneal dialysis for a little over one year. He also was not told of all that went into peritoneal dialysis. After doing research, I have found a very big gap in patient education from the renal community to their dialysis patients. Educate your self, ask your doctor and renal staff all kinds of questions. Also ask about "ALL" the possible complications for peritoneal dialysis, for example Sclerosing Encapsulating Peritonitis. This is one rare, but often very fatal complication from PD, which killed my father.
<Blue Tickle>
Posted
As the years go on, you will likely have to have some maintenance done on your catheter that may well involve cutting some of it off. This poses a great problem for people who don't have any extra. It sounds like you are being well taken care of.
<MKOZLPN>
Posted
quote:
Originally posted by Mick: I have finally started PD and I have got to say, all of the material I was given prior to making this choice was very misleading. *I was told there would be a FEW inches of cather that was actually exteriorized. I have about six inches of catheter then a titanium connector and then a white and blue connector, with a total of about 12 inches of stuff hanging out of my gut. * I was told that people would not be able to tell that I had a catheter. I have a bulge on my left side, where my catheter is. It is very obvious and impossible to conceal. * I was told that I would hook up at bed-time and my dialysis would be done at night, freeing up my evenings with no need to dialize at any other time. I have to do a manual exchange at 2:30pm, at work, another exchange, on the machine at 6:00 and then hook up to the machine at 9pm, remaining on the machine until approximately 6:30am.
I do feel better, energy wise but I am constantly bloated due to the 2.5 liters of dialisate in my peritonial cavity. I am not so sure that I would have made this choice had I known everything.
<MKOZLPN>
Posted
quote:
Originally posted by Mick: I have finally started PD and I have got to say, all of the material I was given prior to making this choice was very misleading. *I was told there would be a FEW inches of cather that was actually exteriorized. I have about six inches of catheter then a titanium connector and then a white and blue connector, with a total of about 12 inches of stuff hanging out of my gut. * I was told that people would not be able to tell that I had a catheter. I have a bulge on my left side, where my catheter is. It is very obvious and impossible to conceal. * I was told that I would hook up at bed-time and my dialysis would be done at night, freeing up my evenings with no need to dialize at any other time. I have to do a manual exchange at 2:30pm, at work, another exchange, on the machine at 6:00 and then hook up to the machine at 9pm, remaining on the machine until approximately 6:30am.
I do feel better, energy wise but I am constantly bloated due to the 2.5 liters of dialisate in my peritonial cavity. I am not so sure that I would have made this choice had I known everything.
